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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Sleep

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Sleep › Reply To: Sleep

June 11, 2013 at 3:53 pm #3754
Barbara
Participant

I notice some nights when i wake up, my heart isnt going fast but the back of my head feels numb. Is that normal in people with pots? I was slightly dizzy too but not enough to make me feel ill.
Other nights i wake up with my heart racing. Always by the morning my heart is going fast again. So i sit up in bed till it settles down. Ive tried raising my pillow but that made my head numb up more often. My dad gets the same trouble as me but much more rarely and his heart does not race just goes numb.

Hi,
Yes I remember waking up every morning with a numb back of head. Wearing a Philadelphia Collar all night stopped this. I had a numb back of head for quite some time after the accident they said that was injury to the C2 nerve but the numbness I woke up with was sort of different. I wondered if it came from within, caused by the CSF build-up, or whether it was because the back of my head and neck junction was getting stretched each night and either affecting the nerve or restricting blood flow. I always seemed to wake up with my chin on my chest, do you wake up with your head in flexion by any chance ?
Barbara
(UK)

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