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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: autonomic neuropathy test

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › autonomic neuropathy test › Reply To: autonomic neuropathy test

August 7, 2013 at 8:33 pm #4064
Susan330
Participant

I’m the opposite. Ha… I’m 24 and was diagnosed with Autonomic Dysfunction a few years ago after a positive tilt table and other symptoms I was having. Usually it stays pretty controlled with Florinef. I’ve tried compression stockings but can’t stand to wear them… I’ve also tried Midodrine but couldn’t handle taking it due to supine hypertension.

Recently, I had a nerve conduction test done which shows severe neuropathy, worse on my left but not good at all on the right either. I’m awaiting a follow up appointment with my neurologist, but I’m highly suspecting Autonomic Neuropathy is the problem, especially since I don’t have Diabetes Mellitus. I also have the other symptoms involved such as urinary retention, postural tachycardia and vasovagal syncope, etc etc… But I am wondering if there’s any way to prevent or treat the neuropathy to prevent further damage? And if it’s very common to get it. I also have Lupus which I know can cause problems, too. Just curious. Thanks 🙂

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