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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: new here – how to diagnose cerebrospinal fluid leak

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › The Latest Research › new here – how to diagnose cerebrospinal fluid leak › Reply To: new here – how to diagnose cerebrospinal fluid leak

December 4, 2014 at 10:41 am #5137
Barbara
Participant

Good advice Violet, find out what particular dye they intend to use first and research it. All I know is that some chemicals they inject you with for MRI’s, can bring their own set of side effects, sometimes much later on in life, so you need to be informed, so you can assess the risk.

Another thought, what makes them think you have a CSF leak, have you had fluid from ears, eyes, or nose, for example ? If so and, if you can obtain a sterile swab to collect it on, they can test it, to see if it is CSF, without having to undergo the rigmarole.
Barbara
(UK)

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