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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Son has POTS

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Son has POTS › Reply To: Son has POTS

October 23, 2014 at 1:41 pm #5072
Barbara
Participant

Your son’s health and well-being come first.

Get it written down, how it makes him feel, having to walk that distance and stand and wait in the cold, get him to be explicit. Any heart fluctuations, muscle/joint pains, limb weaknesses, circulatory issues (numbness, tingling, painful cold extremities, etc), autonomic issues (fast heart-rate, poor temperature control, inappropriate fluctuations in blood pressure, inappropriate sweating, etc), any respiratory issues, brain issues (brain fog, confusion, lightheadedness), check out Dr Diana’s symptoms checklist and ask him which, if any, he experiences and at what points in his journey. I would also mention the fact that he’s more vulnerable than most, due to his restrictions.

I’m sorry, I don’t understand how the authorities work over there. Is there no-one who could act as an advocate, say a childrens group, or a charity, or a government disability department, or something – you need voice-power.
Barbara
(UK)

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