NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › The Latest Research › new here – how to diagnose cerebrospinal fluid leak › Reply To: new here – how to diagnose cerebrospinal fluid leak
STOP, don’t let them do anything invasive, i.e. NO LUMBAR PUNCTURES, NO DYES INJECTED, at least until they’ve checked and ruled out EVERY other medical sign – even then, I’d NEVER have a lumbar puncture – FAR TOO RISKY and can SEVERELY WORSEN your condition. I just thought I’d mention that at this point because it is often used to measure the cerebrospinal fluid pressure, to try and guage intracranial pressure.
Let’s face it, in all of us there is a ’cause’ for why our body is malfunctioning, something isn’t normal and we need to find out what it is, so that we can address it and get out bodies back to normal function. It’s unfortunate when the medical ‘sign’ is subtle, as is often the case in us.
If it were me, I’d be asking why he suspects a leak if the MRI has come back as normal. I would be suspicious of the ‘all normal’ report on the MRI and would request electronic copies of it, along with copies of your medical records. I am saying this because many of us get the ‘all normal’ report when, in reality, all is not normal, there are many subtle (therefore easily missed) signs.
Dr Diana says that the symptoms for low cerebrospinal fluid pressure are similar to those in high cerebro spinal fluid pressure, so it’s easy to confuse. Unless the low pressure is blatant, or you personally suspect a leak, I would be asking your neurologist to check for subtle signs of high pressure, e.g. partially empty sella, low lying cerebellar tonsils, collection of fluid above the brain, swollen optic disk, BP readings that are suggestive of high pressure etc and get these ruled out WELL BEFORE any test that is invasive to the body!