I have had to sleep sitting up at 90 degrees, for the last 10+ years, in a sloping bed, in order to help alleviate some of the symptoms. A rigid neck collar (Philadelphia) has been the best treatment I’ve had so far, showing immediate improvements of several symptoms, for my ‘version’ of the condition (acquired by a head and neck injury – which releases cytokines and starts the cascade). Send me a private message and we’ll discuss the neck collar further.
I’ve been taking the Zyrtec (Cetirizine) Zantac (Ranitidine) regularly, + Diamox (Acetazolamide) tentatively, for a few months now and personally didn’t see any dramatic improvements (other than relief from the GERD symptoms) but analysis, between the start of taking it and now, shows several improvements that have occurred over time in a more subtle fashion.
Regards
Barbara (UK)