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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: treatment for gastroparesis

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › treatment for gastroparesis › Reply To: treatment for gastroparesis

January 1, 2013 at 7:10 pm #3284
Barbara
Participant

Yep, that was me, I remember all of the suffering. I also remember the warm water soapy enema’s (Lux soap flakes, I believe) delivered through a funnel down a long rubber tube – it seemed like every couple of weeks – by the district nurse, who came around on her bike, all those years ago. I was told I had a ‘lazy bowel’. Strangely I was also told to keep away from oranges (ooeer lack of vitamin C – so I’d be lacking in one of the vital ingredients for making good collagen!)

The bowel problems only happened in childhood though. I had a dermoid ovarian cyst removed when I was around 10 or 11 and I don’t remember having much trouble after that (until all this trouble started in my late forties, after my fall). As a child, I’d had pain caused by the cyst for years, which got so bad I passed out, yet had said nothing because I thought it was normal to have abdominal pain.

I have looked through my medical notes and a consultant suggested ‘Hirchsprungs’ for the bowel trouble but I never had any surgery to correct this, if it was.
Regards
Barbara
(UK)
—————————————————————————————————————-
Head & Neck Injury (June 2002); Mild Concussion; Post Concussion Syndrome; GERD; Postural Orthostatic Tachycardia Syndrome (POTS); Peripheral Vestibular Dysfunction; Mild Radiculopathy & Small Fibre Neuropathy (right leg & foot resp.); Partially Empty Sella Oct 2002 (worse by Oct 2004); Whiplash Associated Disorder (WAD); 3mm Cerebellar Ectopia (Chiari 0); Cranio-cervical Instability (CCI) with Posterior Gliding (PG) & Cranial Settling (CS); Brain Compression; Retroflexed Odontoid; Stretched/Elongated Brainstem; Mild Scoliosis; Ehlers Danlos (EDS) type 111; Osteoarthritis; Arrhythmias (Bigeminy and Trigeminy). . . and now Mitochondrial Dysfunction, Mineral (Mg,Mn,Cu,Zn,Selenium), CoEnzymeQ10 & Vitamin (C,D,B3,B12) Deficiencies!

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