Dr D,,, yes, I am medicating for Mast Cell Disease even though I do not have firm diagnosis as yet. I started on antihistamines when I read the paper done at Vanderbilt which reported on the coexistence of a Mast Cell Disease with POTS. Since the antihistamines helped, that encouraged me to look deeper…. thank goodness!
How are you doing with the Gastocrom? It made me nauseous in the beginning, so had to take an H2 blocker before I took the Gastrocrom.
Dr. Clair Francomano.. I have heard that name before. I may have to see what I can do about an appointment with her. The Rheumy I saw a few weeks ago said I did not have the Vascular type, but I don’t know how much…If anything…he knowsd about EDS.
Sending my best to you and your children. The stuff can be so difficult to deal with.