Hi Deb, As far as vascular issues go, it seems that most of us have some sort of vascular “stuff”, even without having the vascular diagnosis, or the dilated aortic roots. In my family, we have spider veins, are prone to varicosities and have CCSVI. My mom also lost 2 sibs from vascular issues (aneurisms). But everyone is different. Now that we know we have MCAD (mast cell disorders) and mast cells can affect our collagen, endothelium, etc., I wonder if that is what causes some of these issues? Frankly, the jury’s still out!
I would recommend seeing a mast cell specialist. We will be seeing Dr. Castells soon. Even though we’re already on meds, there are others, and we may need to go up the ladder, so to speak. Did you see the article with the new mast cell protocol? VERY helpful! Because so much is happening so quickly in the mast cell world, I wanted to be sure that my kids and I are in on the latest (yes, we’re very competetive). ha. I will keep you posted about whatever I learn, OK?