• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: Anyone else with POTS?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Anyone else with POTS? › Reply To: Anyone else with POTS?

January 19, 2012 at 4:03 pm #1688
PalominoMorgan
Participant

I wanted you to know that hyperadrenergic POTS and mast cell disease are linked SO STRONGLY. Please keep that in mind as you work on your meds, OK? Benzo’s help us, opioids hurt us (as do NSAID’s, histamine foods, stress… most everything on the FACE OF THE PLANET. OK, I’m exaggerating. Rice seems to be fine. 🙂

http://hyper.ahajournals.org/content/45/3/385.long

This is an article from a bright, young doctor who said the following about the “connection” betweenhyperadrenic POTS and mast cell. I am copying and pasting another person’s account of their appointment with her. They saw her at Vanderbuilt.

“I asked why she had decided there was a Mast Cell connection to H. POTS and she
told me she had been though the Pharmacology Program, and was doing some work in
Dysautonomia, and that she had noticed the similarity in symptoms of people
being seen in the two Departments. (Basically if one went through one Dept, they
would receive one diagnosis; if they went through the other, they would receive
a different one… Mast Cell Disease or POTS.)”

Sounds like depending on which department you got sent to you came out with a different label. Sort of like masto and multiple chemical sensitivity. Is it something different or do all masto people just have MCS?

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020