I wanted you to know that hyperadrenergic POTS and mast cell disease are linked SO STRONGLY. Please keep that in mind as you work on your meds, OK? Benzo’s help us, opioids hurt us (as do NSAID’s, histamine foods, stress… most everything on the FACE OF THE PLANET. OK, I’m exaggerating. Rice seems to be fine. 🙂
This is an article from a bright, young doctor who said the following about the “connection” betweenhyperadrenic POTS and mast cell. I am copying and pasting another person’s account of their appointment with her. They saw her at Vanderbuilt.
“I asked why she had decided there was a Mast Cell connection to H. POTS and she
told me she had been though the Pharmacology Program, and was doing some work in
Dysautonomia, and that she had noticed the similarity in symptoms of people
being seen in the two Departments. (Basically if one went through one Dept, they
would receive one diagnosis; if they went through the other, they would receive
a different one… Mast Cell Disease or POTS.)”
Sounds like depending on which department you got sent to you came out with a different label. Sort of like masto and multiple chemical sensitivity. Is it something different or do all masto people just have MCS?