I have POTS, Dysautonomia, and EDS3…. learning more about Mast cell and the pressure on the brain from Dr D. It took me 7 years to figure it all out and IM still at it I think :)… HOpe to learn more from all of you!! Tracey– PS- My sister has it too just like me. So we think it was carried from my Mothers side although she didnt have many symptoms, but my grandmother does.
Hi Tracey! Welcome to our “family” of sorts! We’ll figure this out, I have no doubt! 🙂 My mom seemed to only have skin signs until I actually checked her hands and wrists. Holy cow, at age 77 she was more hypermobile than any of us! But she is doing better overall. I think the mast cell issue may be the difference… Much to learn, and we’re glad you’re here to help us learn from each other! 🙂