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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: In Desperate need of advice

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › In Desperate need of advice › Reply To: In Desperate need of advice

November 10, 2014 at 9:23 pm #5104
jlreed
Participant

Dr. Diana,

My Doctor did not elaborate on the specifics of the “sinus disease” just that it was there. This was the original report:
BRAIN MRI:

The gyri and sulci are normal with preservation of gray white matter differentiation. There is no acute ischemia, hemorrhage, or mass lesion. There are no significant foci of increased or decreased signal. The ventricles and extra-axial spaces are normal. Normal flow-voids are seen at the skull base. Internal auditory canal structures are normal. There is mucosal thickening in the left frontal and maxillary sinuses with an air-fluid level in the left maxillary sinus. The mastoid air cells are well aerated.

BRAIN MRV:

The superior and inferior sagittal sinuses, transverse sinuses, straight sinus and sigmoid sinuses are patent without evidence of filling defect. The smaller caliber sinuses and occipital sinus or suboptimally evaluated. IMPRESSION: Normal noncontrast MRI of the Brain. Normal MR venogram submitted of the brain.

It was then amended to state:
Amended Report: There is inflammatory sinus disease.

Most labs have been normal except I have low levels of Magnesium and Phosphate and a high platelet count. Also I came back positive for Rocky Mountain Spotted Fever although I have never had any symptoms for this particular tick borne illness.

I am beyond baffled now. I was convinced that I was suffering from high intracranial pressure. Being in the military makes it very frustrating since the majority of our patient population is health and no one has heard of any of my conditions.

Many Thanks for you response I am a huge supporter of your work and I know that it will change medicine as we know it!

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