Hi MGC, I have POTS! (as do my 2 kids). Tell me that you are trying treatment for mast cell disease. Please. If you haven’t caught word of that yet, please look at my theory (you can see the cover on the home page of this website. Click on it and you’ll get there). Some doctors are even thinking that mast cell disease = POTS.
We are all on treatment now. I “accidentally” started Zyrtec 7 years ago and knew it was helping but I didn’t know why. Now we take a double dose of Zyrtec and Zantac and are adding Gastrocrom today (by Rx). Holy smoking cow. This is DEFINITELY at least part of the problem! Please, please, please read, learn and ask your doc about mast cell treatment. And then will you let us know how you are doing?