NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Anyone else with POTS? › Reply To: Anyone else with POTS?
I also have ever multiplying spider veins on my face (and nope I am not a drinker ; )) and legs,
sometimes small blood vessels in my fingers and toes do, I think, just burst- without any reason (no knocks or whatever)- it feels like someone suddenly stabs a needle in my finger/toe and wildly wriggles/stabs it around and then I’m left with a deep and “bloddy under the skin’ bruise that takes ages to go away
( and of course I frequently ‘normally'(meaning without the ‘needle stabbing’ feeling, actually dont feel it at all, bruise ‘without any reason’), my veins are v visible (though I think that’s in part due to my v thin skin)-and I seem to have a vein that’s maybe kinked or in the wrong place (a very gentle osteopathic manipulation of my shoulder made me instantly pass out, blood flow to brain was interrupted)
and to me my pots and orthostatic intolerance are in a way also kind of ‘vascular issues’ – blood is not able to be pumped as much as necessary to my brain when standing, not fast enough when going from sitting to standing, or after eating, and my heart goes tachycardic…
and sometimes when sitting and feeling all relaxed my body/vascular system(?) or would that be adrenergenic system (?) goes haywire and sends me into a ‘body panic attack’ (which used to, but no longer, also give me a bit of ‘mind panic’) i.e. I get incredibly strong body “fight or flight” responses for absolutely no external or ‘mind internal’ reasons
xxg
Oh, Hon, you sound just like I did! Of course I can’t diagnose you over the internet, but what you’re describing sounds like hyperadrenergic POTS. We are “special” zebras. Luckily, this is my specialty! Did your geneticist rule out vascular EDS? We all have kinda lousy vessels and thin skin, but vascular is even more “special”. Did you read The Driscoll Theory on my site? I humbly believe it will help you a tremendous amount. I wouldn’t be here today if I hadn’t gone on this treatment. Starting with mast cell treatment is the easiest place to start. And WOW, you will get some immediate relief. Then you can look at your remaining symptoms and see if it sounds like high intracranial pressure. Finally, CCSVI (don’t forget the transverse sinus) may be an issue for you. Likely so, since our veins basically suck… 😉 When the transverse sinus is stenosed (collapsed) it causes higher intracranial pressure. Diamox can control it — hopefully long enough for the researchers to develop a stent that we can feel good about! Please, please, please take a look at the Theory, OK? It was written for cases just like yours. Will you keep us posted? Big hug, 🙂 Diana