Hi bearcat… I’ve been told I have Benign Joint Hypermobility as well, but no testing. Since I also have some vascular damage, I am now wondering if I may have the Vascular type EDS instead. Nice to ‘meet’ you.
Most EDS folks have vascular issues, even without having the vascular form of EDS. I know I do! But a good geneticist can rule that out for you (I <3 Dr. Clair Francomano in Baltimore).
Let us know, OK?