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ello dr d : ) and everyone : )
after years of ‘knowing’ (from being told by my EDS consultant and reading up on things) that I most likely have various autonomic dysfunction probs (pots, orthostatic intolerance,exercise intolerance, temperature regulation probs, and the ‘oddness’ that if I stay sitting upright at a dining table for ‘long’ after eating I will get nauseous, bp drops and/or I’ll get a ‘gastric and circulatory system collapse’)-
I finally have been referred to an a d clinic this year- and yep no surprise early indication shows a d- am currently awaiting tests to find precisely what kind of a ds I have (waiting times for tests… some 8 months…)
and yep adrenergenic pots does sound poss… also because my gastro symptoms seem to fit, diarhoea-like stools are my normal (and I’ve only ever had constipation maybe 4 times in my whole 52 yrs), bloating is normal for me and I have plenty of nausea probs…
(so are we something like houndstooth patterned zebras? lol )do you with adrenergenic pots also get that thing that when you really push yourself you can really “fly on and on and fly high on adrenaline” (=keep keep going) BUT you then cant really switch off/relax(sometimes for days) until you just ‘crash’ (and stay ‘crashed’ for days)?
(I do try to avoid this state, but life sometimes just wont let you… ; ))
oh I have also since childhood been cyclothemic, may that play a part?- or is my ‘cyclothemia’ poss due to the a pots???and yep I have read your fab driscoll theory- THANK YOU!- and I will soon try the zyrtec/zantac combo
Yes, I’ve had all of that! The cyclothemic episodes, we’re describing as bipolar — and it is all over the place with POTS. Interestingly, mine went away after 2 weeks on mast cell therapy (did you see the video on Irritability? Bipolar? It’s all in there! No secrets here!
Please let us know how you respond to Zantac/Zyrtec, OK?
Big hug,
Diana