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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Anyone else with POTS?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Anyone else with POTS? › Reply To: Anyone else with POTS?

January 19, 2012 at 3:48 pm #1687
PalominoMorgan
Participant

Amanda,

I had to quit the Florinef after a month. It occurred to me that the 2 weeks of torturous painful high pressure headache when I hadn’t done anything stupid was because of the Florinef. I tapered myself down for a week and then told the prescribing dr, my PCP, that it was a no go. When I checked drugs dot com I saw that it had the side effect of pseudo tumor cerebri, aka intercranial hypertension. I offered two other possibilities I had researched, but my PCP wasn’t comfortable prescribing either for some reason. Outside her comfort zone apparently. Beta blockers were obviously out of question for me given my hypotension so I’m on nothing for my POTS.

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