It was by being diagnosed with ‘Features of POTS’ way back in 2004, by Professor Christopher Mathias, at the Autonomic Referral Unit, St Mary’s Hospital, London W2 1NY, that set me down this long path of discovery, in the first place.
The EDS diagnosis came some 6 years later with Professor Grahame. Thank heaven for these people for without them we’d be lost. Let’s hope you get them on board Dr Diana, then maybe we can get some really affective treatment in this country!!!
Head & Neck Injury (June 2002); Mild Concussion; Post Concussion Syndrome; Postural Orthostatic Tachycardia Syndrome (POTS); Peripheral Vestibular Dysfunction; Mild Radiculopathy & Small Fibre Neuropathy (right leg & foot resp.); Partially Empty Sella (Oct 2002) Fully Blown Empty Sella (Oct 2004); Whiplash Associated Disorder (WAD); Cerebellar Ectopia (Chiari 0); Cranio-cervical Instability (CCI) with Posterior Gliding (PG) & Cranial Settling (CS); Brain Compression; Retroflexed Odontoid; Stretched/Elongated Brainstem; Vitamin D deficiency; Ehlers Danlos (EDS) type 111; and now Osteoarthritis!