ello dr d : ) and everyone : )
after years of ‘knowing’ (from being told by my EDS consultant and reading up on things) that I most likely have various autonomic dysfunction probs (pots, orthostatic intolerance,exercise intolerance, temperature regulation probs, and the ‘oddness’ that if I stay sitting upright at a dining table for ‘long’ after eating I will get nauseous, bp drops and/or I’ll get a ‘gastric and circulatory system collapse’)-
I finally have been referred to an a d clinic this year- and yep no surprise early indication shows a d- am currently awaiting tests to find precisely what kind of a ds I have (waiting times for tests… some 8 months…)
and yep adrenergenic pots does sound poss… also because my gastro symptoms seem to fit, diarhoea-like stools are my normal (and I’ve only ever had constipation maybe 4 times in my whole 52 yrs), bloating is normal for me and I have plenty of nausea probs…
(so are we something like houndstooth patterned zebras? lol )
do you with adrenergenic pots also get that thing that when you really push yourself you can really “fly on and on and fly high on adrenaline” (=keep keep going) BUT you then cant really switch off/relax(sometimes for days) until you just ‘crash’ (and stay ‘crashed’ for days)?
(I do try to avoid this state, but life sometimes just wont let you… ; ))
oh I have also since childhood been cyclothemic, may that play a part?- or is my ‘cyclothemia’ poss due to the a pots???
and nope I dont think VEDS is a concern for me, as I was dxed by prof rodney grahame (our UK equivalent of your dr francomano)- I just think that there’s quite a bit more overlap of symptoms poss than was previously thought.
and yep I have read your fab driscoll theory- THANK YOU!- and I will soon try the zyrtec/zantac combo
oh dr d could you please have a look at my “no stereovision’ post- I’ve added some q s there
thank you!
xxg