Hi Staying Strong. I have had hi B12 in the past also. In April 2010 it was flagged Hi at 734 pmol/L and I was told to stop taking supplements which I did. April 2012 (2 yrs later) it was checked again and it had risen to 1097!
It was at that time my health really started to deteriorate (eventually developed into POTS and dysautonomia).
My functional medicine doctor told me to go on a very strict gluten-free diet in hopes it would help my various disabling symptoms and perhaps some of my wonky lab work would be corrected as well. Three months later I felt only marginally better but interestingly, my B12 had fallen to a level of 437! Also my Fibrinogen had been flagged as High and that also came down to the ‘normal’ range. I don’t understand how a gluten free diet could affect the lab numbers to such a degree yet my symptoms continued to escalate. Perhaps the no gluten is not connected at all. I’m just telling you what my lab reports said before and after the diet change.
I remember being quite concerned after googling the disorder possibilities so I understand where you’re at. Like you’re name says, “Stay strong”. If you think your doctor isn’t taking the results seriously enough, perhaps you should book an app’t to have them discussed with you.
Charlie