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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Who is on IV Saline?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Who is on IV Saline? › Reply To: Who is on IV Saline?

November 7, 2013 at 10:59 am #4578
MJ
Participant

I saw a specialist (urologist) and he felt I had interstitial cystitis. However, I did not go through with the procedure for confirmation. I’m sure you can understand why! It sounded very painful. This was in 1999, when I was still able to work sometimes.

The electrophysiologist that recently diagnosed me (2013) with Vasovagal syncope and an increased intrinsic heart rate did mention that I could have low blood volume. I do not have low BP. I am like you – I have high blood pressure on standing (which accompanies my POTS). I did not get an official pots diagnosis because I had a really great day when I had the autonomic testing. In fact I felt so great I thought I would’ve tested negative for everything, but tested positive for VVS and IIHR.

Also, I have struggled with anemia I believe for at least two decades. I recall my RBC or WBC being a bit off and my blood work a few years ago. My ESR was high around the time I was diagnosed with interstitial cystitis – is this relevant? If there’s anything you want me to look up in my blood work let me know that I can do that.

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