I saw a specialist (urologist) and he felt I had interstitial cystitis. However, I did not go through with the procedure for confirmation. I’m sure you can understand why! It sounded very painful. This was in 1999, when I was still able to work sometimes.
The electrophysiologist that recently diagnosed me (2013) with Vasovagal syncope and an increased intrinsic heart rate did mention that I could have low blood volume. I do not have low BP. I am like you – I have high blood pressure on standing (which accompanies my POTS). I did not get an official pots diagnosis because I had a really great day when I had the autonomic testing. In fact I felt so great I thought I would’ve tested negative for everything, but tested positive for VVS and IIHR.
Also, I have struggled with anemia I believe for at least two decades. I recall my RBC or WBC being a bit off and my blood work a few years ago. My ESR was high around the time I was diagnosed with interstitial cystitis – is this relevant? If there’s anything you want me to look up in my blood work let me know that I can do that.