It is very hard to get much family health history that is accurate pass our grandparents. At least for me and my age group. I have trace EDS to my Grandparents. I see evidence in both sides. Unfortunately, I lack a traceable gene marker. I wish I did to track it in family members, but I guess the symptoms are very obvious. My geneticist had no trouble diagnosing me because I have a very textbook case of Ehlers-Danlos. Unfortunately, my mom and kids have it too. I personally feel that the classical type since it’s autosomal dominant is 100% passed on. It appears that 100% of my mom’s side of family is affected by Ehlers-Danlos syndrome. I am the first one actually diagnosed with EDS. I appear to be the one most affected. I hope it stays that way! My mom does have a severe heart murmur and she’s going to cardiologist next week for an echo. We will see what they come up with. Her cardiologist at least knows about Ehlers-Danlos syndrome. This week we are taking the kids to the pedi to inform him of my diagnosis. I was waiting to see if I had the vascular form along with the classical form since both my grandparents appeared to had Ehlers-Danlos.
Shonda