Hi, I’m waiting on an October appointment with a Geneticist to confirm EDS as I have hypermobility amongst lots of other symptoms. In the last 8 months, my eyesight has become problematic, with constant double & blurred vision I put down to meds. After it continued worsening, I visited my Optometrist who confirmed the beginning of a cataract & the reason for my distorted vision as I require a corneal transplant in about 3 years. He emphasises I had 20/20 vision when last tested 8 months ago. Since seeing him a fortnight ago, my vision has deteriorated further so I now can’t read anything or use my phone without reading glasses. I have made an appointment with my Opthamologist & the speed of my vision loss is completely frightening. Has this happened to others? When I place my finger on my closed eyelid I can feel a raised lump that is on the surface of my eye, not in my lid & have had this for at least 2yrs.
HI Lisaw, Did your doctor tell you if you had keratoconus (it sort of sounds like it, but I’m flying blind here). Does the double vision occur out of that one eye, or only if both eyes are open? If it is keratoconus, you may be a good candidate for corneal cross-linking. It’s in my book (see the book on the home page). Perhaps that will help you? Let us know, OK? 😉