Hi Jennifer, I’m so sorry for what you’re going through. (((Big hug))) Elrod is right — you want to have your daughter tested for vascular EDS, IMHO. This is one form of EDS that can be tested for, genetically. Three weeks or so later, you have your answer. The GREAT news is that most doctors are using Losartan to help strengthen the vessels, and this treatment is showing great promise. It is used in Marfans syndrome now. I remember my fear of VEDS, and how frightened I was at the time. Honestly, the symptoms that you share here may be indicative of most any of the forms of EDS, so promise not to panic, OK? There are so many great minds here, and we will all share our collective knowledge for you. Will you let us know how testing comes out? It’s worth pushing for it, I think. Gentle hug, Diana