I see my doctor again Monday. I’m going to ask him some extensive questions about compression gear. With the most obvious pooling in my hands, and full length compression gloves either being ungodly expensive and my growing fondness for my gloves with grips (they make driving so much easier)… if just using sleeves is well enough or if I need the compression over my hands as well.
He had told me to buy the cheapest set of compression socks, but to my understanding… you need at least 20-30mmhg. I wore compression stockings like that through my pregnancy and I’m totally ok with running around with that sort of compression on my body throughout the day (I kinda find compression soothing).
I’m feeling pretty positive right now. I’m hoping that all my perseverance is going to finally pay off. 15 years of this, maybe I can live a relatively normal life???
I don’t know if I’m just screaming into the void at this point. I don’t know what to expect of people. My husband is as grateful as I am that we almost certainly, finally have a name to this thing.
I had suspected it for a long time but everytime I had full faint, people just assumed I needed to drink more water or eat something (I’m not saying there’s not value in that, I’m just saying that I have the symptoms regardless). People freak out and don’t really listen to me when I try to tell them that I LITERALLY just need them to leave me alone and let me lay on the floor for a couple minutes. They try to usher me up to sitting to give me water or to standing to get me to a couch (and guess how that goes). For a long time, I literally thought it was that. I just passed it off like the doctors did. I had myself fully convinced it was anxiety till I realized that I was having the attacks without anxiety. In fact, I kept feeling like something was fueling my panic attacks!
I was almost entirely housebound for 3 years fearing that I’d have a panic attack in public and it’d build and I’d either burst into tears or pass out.
I’m just floored and I kinda feel robbed… because if a doctor had just taken the time at any number of visits (I have asked almost every single one of my doctors about this problem at some point or another) to ask me questions or do a quick test to see if the redness in my hands was blood pooling and not overwhelming inflammation (no one ever tried raising them up to see if it goes away, and I was nearly convinced it was a trick of the light and my husband thought it was a sunburn!)… we literally could have already done something and I could have enjoyed my 20s without scaring the hell out of a whole bunch of people a whole bunch of times. (To be fair, I do understand that it’s notoriously difficult to diagnose)