NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › CCSVI › Hypothermia? Bloodwork. Doctor cooperation. Diagnostic Proof. Foolproof diagnostics? › Reply To: Hypothermia? Bloodwork. Doctor cooperation. Diagnostic Proof. Foolproof diagnostics?
Yes, I meant to say macrocytosis (enlarged red blood cells). I am on no medication for this. The doctor who actually told me that this was discovered (within the 24 tubes he ordered to be taken from my 5’8″ and 110 lb terrified body) is one who treats me like a whiny hypochondriac. The nurse almost collapsed my vein and I was purple and had regressed to the mentality of a horrified 3 year old. This was the only bloodwork (aside from TSH) that has been reviewed with me. I was refused a Free T4 for a couple of years.
Anyway, yes, macrocytosis. Please feel free to let me know of any potential medical negligence. While I live in a relatively lawless state within the US, I’d still be interested. Also, I’d like to figure out what to make of the various doctors and whether or not I can trust them or should avoid them at all costs in the future.
As for the CCSVI, I know almost nothing about it. This is the one that Dr. Diana can diagnose with an MRI or MRA, I think. I do think I need an MRI for that and if I submit myself to more traumatic testing, I will be sure that it is ‘expert approved’ by a doctor who understands EDS and associated issues that I have (like Dr. Diana).
I will continue to read and re-read your response and your interpretation of my X-rays. Of course, I fully understand that it is not a medical evaluation. I’d just like somewhere to start and know whether or not I need to explain to the doctor that I am, indeed, having some issues. I know I feel terrible and have always been told of misalignments (which I assumed chiro care or time had remediated).
OH, NO I DID NOT BUMP MY HEAD prior to that X-ray. I did have a concussion but that occurred later, maybe around 2002 or 2003?
Thanks, too, for endo info. I began to respond but was so exhausted that I found myself running on. I ended up copying and pasting into emails so I could review what I was trying to say and post back to you later. I do this a lot when ‘brain fog’ kicks in on me and I can’t finish my task or lose track of my composure. I also felt that I was whining too much. I guess, beware of run-on, whiny post under endo section since I am, again, feeling exhausted and won’t be able to edit myself much in the case I decide to go ahead and post now. 🙂
Did you think I meant macrocytosis? Is there a medication for it? The doctor told me that it’s something alcoholics get. Well, color me purple! I’d be terrified to even attempt a glass of wine these days. I’m so dysfunctional that I can’t afford to lose a shred of my ‘wits’. I can’t risk a glass of wine. I do miss having wine with dinner in the past or chillin with my co-workers and having a glass after work or even just enjoying one as a toast to my health, success, and happiness! It couldn’t be more diff now though! Then the doctor peered at me to see what my reaction would be if he implied that I might be an alcoholic – mine was a look of utter shock and being blown away by the mere implication! I had to look up macocytosis when I got home but never really ‘got it’ or else was simply overtaken by the multitudes of ailments that plague me daily.
Thanks for taking a peek at these posts. I appreciate it a lot!