I had one particular ‘hypothermic moment’ that comes to mind where the nurse tried 3 or 4 times to take my temp. Then, began questioning me about the possibility of my drinking out of my water bottle (which was sealed and hadn’t been opened). I told her that I really was feeling bad. She finally gave up on trying to take my temp.
I’ve had other instances where the nurse is unable to take my temperature. In fact, this also happened the last time I was at the doctor – a couple weeks ago. I just told the nurse that I’m “all over the board” and it didn’t always register.
I’ve had nurse find high blood pressure, a diff occasion yet again, while I’m simultaneously feeling something going on in my chest.
I remember ‘back in the day’, how frustrating it was to take my car in for an intermittent squeak (not a fan of the car squeak). Now it’s my own body – how incredibly dreadful. Strangely, while it happens over and over again, it never seems to culminate with any ‘healthcare professional’ that there is something gravely amiss.
I’m sure it’s happened other times but this is what comes to mind without effort. Also, happens all the time to me – I often can’t get a temp but chalk it up to thermometer malfunction. What else am I gonna do? Who the heck am I gonna tell?!
Regarding my bloodwork. I’ve also since noticed that there was a recommendation (awhile ago, 1-2 years) of possible toxicity. I have no idea which specific result this would refer to. When I asked my PCP a couple of weeks ago, she said that we would take more blood and check the new results. Also, macrocytic anemia was suggested and recommendation was made by pathologist to test for this. Additional recommendation for megaloblastic anemia to be tested for. Again, all of this was indicated quite awhile ago. It has yet to be addressed. I only discovered these things during my lay research. It’s horrible to feel so stinking sick and have to ‘wring myself out’ in bits and pieces to search for answers. Sheesh, if I were going to be some sort of research doctor or tech, I’d sure LOVE to be paid for it. Alas, what would have take me hours, now takes me months. I’m so ridiculously ‘slow’ for such a multitude of reasons – it’s insane, really.
Does everyone have issues with red blood cells, white blood cells, homocysteine levels, B12, etc? Do we all have these things in common?
Also, I have upcoming bloodwork – any suggestions beyond CBC and thyroid panel? I was considering mast cells but can’t figure out how to make an intelligent request. I guess I don’t exactly understand mast cells. I mentioned it to my PCP and she considers it allergies, I think. She did mention an antacid to assist with my GI issues. I leapt to mention Z&Z and she, too, felt it was relatively benign and worth a try. Is homocysteine included in CBC – can’t remember – I don’t think so though. Anyone have any suggestions for bloodwork?