NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › CCSVI › Hypothermia? Bloodwork. Doctor cooperation. Diagnostic Proof. Foolproof diagnostics? › Reply To: Hypothermia? Bloodwork. Doctor cooperation. Diagnostic Proof. Foolproof diagnostics?
I struggle to stand in the shower now, for some reason. No, not because the water is too warm either. I can’t tell you how many times I’ve had to get out with shampoo and/or conditioner left in my hair just so I could sit down or lay down – even just to stabilize myself on the bathroom floor to keep from falling or something. Ridiculous. I have had success warming up in a bath before or spending exorbitant amounts of time with an electric blanket (and I think even then, I only warmed after falling asleep – possibly for hours). I would actually be afraid to take a warm bath now since heat crushes my chest in a suffocating sort of way. I used to be like a lizard and just soak up the sun like nobody’s business – I cannot anymore. I used to have issues with frozen appendages but now I have intense problems regulating either way – can’t handle cold but can’t handle heat either. Sometimes I’m freezing half to death and other times I am frying, sweating, and burning – the undersides of my feet blow up painfully (one of the things that affects my walking) and my toes feel like burning hot dogs on a grill getting ready to split open. I thought that was neuropathy? I hate having BOTH hot AND cold problems. Even though my frozen appendages used to freak people out, it was easier to deal with one issue by saying, “Cold hands, warm heart” and continuing on with a smile. 🙂 I had no idea it might have been a clue of things to come. Nowadays, It’s not so cute when you’re burning up with sweat and smelling like cat pee. 🙁 There’s nothing cute about what is happening to me now. From Cinderella to the Elephant Man sort of deal. Quite a shock in oh so many ways!
Blessings to you. 🙂
I’m soooo sorry, Hon. Does it help at all to know that you are not alone in this? Like most of us, I, too, started out with horrible hypothermia, then went to the intolerance of a one degree temperature change in either direction. I had a fan and a heater with me at all times. CRAZY. Folks with “chronic fatigue” or “M.E.” describe the same thing. I do believe I know what is going on, and how to reverse this. Hence the push to get the trials going!!! You’ll be hearing a lot about them in the upcoming future. Hang in, my friend. Big hug, Diana