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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Hypothermia? Bloodwork. Doctor cooperation. Diagnostic Proof. Foolproof diagnostics?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › CCSVI › Hypothermia? Bloodwork. Doctor cooperation. Diagnostic Proof. Foolproof diagnostics? › Reply To: Hypothermia? Bloodwork. Doctor cooperation. Diagnostic Proof. Foolproof diagnostics?

July 11, 2012 at 2:42 pm #2574
Megha
Participant

Hi Megha,

Thanks for mentioning. I’ve actually noticed that it’s not necessarily quite as benign as I’ve always been led to believe. Believe me, my temperature is among the least of my worries but I do wonder if it has any meaning.

Another weird thing, I’ve noticed people mentioning smelling random things. I’ve had that oddity too. Keep smelling cigarette smoke every now and again. I kept feeling confused about it because it was 100% impossible that there had actually been any cigarette smoke nor could there have been any source of this when this happened. Yeah, I can understand ‘blowing off’ getting a whiff while outside in a residential neighborhood. Maybe the wind could catch it and blow it around – no telling. I was smelling it when it was impossible, like in my home where nobody (smoker included) had been there. I don’t smoke. Impossible. Today I smelled popcorn and it confused the heck out of me. I should probably try to find that post and add my info. It was on here somewhere.

How’s your blood pressure? Do you ever have the feeling that there is no blood in your freezing cold legs and feet when you sit? Can’t help but ask since I haven’t been able to warm my legs from the knee down for the past few days (heater won’t work, heating pad won’t work). I wonder if frozen extremities have much to do with LBT or LBP? I mean it’s so bad. Anyway…. a day in the life….

I’m not having problems with the freezing legs and arms currently, but I do still often have freezing hands and feet. And at times the only way I can get warm is to stand in a very hot shower or soak in a very hot tub. That hasn’t happened to me recently, though.

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