• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: Hypothermia? Bloodwork. Doctor cooperation. Diagnostic Proof. Foolproof diagnostics?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › CCSVI › Hypothermia? Bloodwork. Doctor cooperation. Diagnostic Proof. Foolproof diagnostics? › Reply To: Hypothermia? Bloodwork. Doctor cooperation. Diagnostic Proof. Foolproof diagnostics?

September 24, 2012 at 10:34 pm #2959
Dr. Diana
Keymaster

Oh, and my friends, I think we’ll be able to reverse most of these symptoms WITHOUT angioplasty. I wouldn’t fret at all if you can’t get in for CCSVI treatment. I’ve come to learn that I think we need systemic treatment, as opposed to venous ballooning to correct our issues. To give you hope, I didn’t think I could go on one more day. I told my hubby that I felt like I was being eaten alive (try to explain THAT to our doctors). It took a while, and it took hitting the dominoes in the right order, but FINALLY, I think I’ve got it. Please keep up your Zyrtec, assuming your docs are OK with that, while I finish locking up the prep work for the treatment trials? We’ll get there… This is one CRAZY condition, and the lack of understanding surrounding it is shocking. I know, believe me… During some of those VERY DARK days, I wondered how I was supposed to “complete my journey”. Have you ever been there? I hope not, but I’d completely understand if you have. My kids were sick, too, though, so I HAD to keep working on it. Every day. Every night. With no doctors who understood… That’s nuts. But I think I get it now. My kids and I are back with the living (my son has osteoporosis and liver fibrosis, though, left-over from his 4 years before I had some of my light bulb moments). There ARE some hints in our blood work sometimes, that get ignored, and our blood work in no way reflects the degree of illness we experience. I understand how doctors remained perplexed. But soon, very soon, we won’t need to fight for treatment. That’s my promise to you. 😉 Diana

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020