Oh, and my friends, I think we’ll be able to reverse most of these symptoms WITHOUT angioplasty. I wouldn’t fret at all if you can’t get in for CCSVI treatment. I’ve come to learn that I think we need systemic treatment, as opposed to venous ballooning to correct our issues. To give you hope, I didn’t think I could go on one more day. I told my hubby that I felt like I was being eaten alive (try to explain THAT to our doctors). It took a while, and it took hitting the dominoes in the right order, but FINALLY, I think I’ve got it. Please keep up your Zyrtec, assuming your docs are OK with that, while I finish locking up the prep work for the treatment trials? We’ll get there… This is one CRAZY condition, and the lack of understanding surrounding it is shocking. I know, believe me… During some of those VERY DARK days, I wondered how I was supposed to “complete my journey”. Have you ever been there? I hope not, but I’d completely understand if you have. My kids were sick, too, though, so I HAD to keep working on it. Every day. Every night. With no doctors who understood… That’s nuts. But I think I get it now. My kids and I are back with the living (my son has osteoporosis and liver fibrosis, though, left-over from his 4 years before I had some of my light bulb moments). There ARE some hints in our blood work sometimes, that get ignored, and our blood work in no way reflects the degree of illness we experience. I understand how doctors remained perplexed. But soon, very soon, we won’t need to fight for treatment. That’s my promise to you. 😉 Diana