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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Supine X-rays?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Supine X-rays? › Reply To: Supine X-rays?

October 30, 2012 at 2:55 pm #3092
Dr. Diana
Keymaster

I think it did help and feels like it’s tracking better which is huge. I think the nerves need to heal as it’s been out for a long time. Years ago I had a posture bra and I can see if I can find it again. I tried to pop my shoulder back into place with a similar move squeezing the elbows together and it felt good and popped a little but it didn’t help really. ah well..
Chiropractors aren’t detecting these things which is disappointing. It is what they do after all.

Hang in, Anne. I really think that once you get started on some treatments, the hypermobility will become less of an issue. I speak from personal experience!! I have every brace known to man, and I used to have to wear them all, mostly simultaneously — from finger splints, a cervical collar(OMG, I couldn’t turn my head or even my EYES), the posture brace, a knee brace, wrist braces, ankle braces, blah, blah, blah. Yea, I was REALLY SEXY looking when I went to bed. HA. Funny how I almost NEVER reach for a finger splint now (when I do, it’s usually because it’s cool looking!), I wear a soft collar only at night time, and wear my posture brace late in the day (I have a torn rotator cuff which likely isn’t helping matters). My HUGE question for all of us (I don’t yet have the answer) — am I less flexible now? I can’t touch my forearm with my thumb any more. That used to be easy. My hip doesn’t pop out any more (and, dang-tootin’, you can be sure it is not from exercise!)… I’ve noticed a few other things. COOL!! I’m staying on the regimen, tweaking it a bit, but I’m DYING to see if I still have left ventricular diastolic dysfunction (that is an objective indicator of tissue remodeling). If not, HOT DIGGETY!!! We’re getting somewhere!!! My test for LVDD is in April. All fingers and toes crossed for everyone with these invisible illnesses. I think that tissue remodeling is a huge part of our problem — but no one’s ever tried to reverse it before (I don’t believe). Back to being a guinea pig… 🙂

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