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I have pain in many areas and I finally decided to go to the doctor but I waited until I found a new one. She was just as disinterested as the previous doctor. She ordered an x ray of my shoulder, hip and lumbar spine (I had to ask her to please add the thoracic as there is pain there too). The spine x-rays were taken lying down supine. Now I’m wondering if that is the best choice with joint hypermobility? Standing introduces the impact of gravity on the joints and would better display any dysfunction?? She actually called the same day to tell me they were all normal. Now that’s a surprise for such personal attention! But what in heaven’s name is causing all this pain? My shoulder feels like a muscle tear or something it’s so bad and my hip feels like it’s dislocated. My back hurts and feels numb sometimes. How could it all be normal? My muscles feel so different than they did even two years ago. My calves are cramping more and more frequently too. I have a pain in my eye when I’m trying to scan and read things on TV about six feet away, only the left. If it’s all just myofascial or calcific tendonitis then massage would help and sometimes it just feels worse. I’m only 48 and I feel 75. Just opening and closing the car door is difficult. It’s not bad enough to stop working (I don’t think) but all I can do is work and rest. Self-care is a full time job.
Hi Anne, I think you have every right to question your doctor on this. YES — vertical x-rays and MRI’s are usually preferred for just the reasons you cited. If your doctor saw no problems, my guess is an MRI (vertical) would be next. Would you be sure to get a copy of your RAW DATA? It’s shocking what radiologists will sometimes call “normal”, and your doctor may depend on those reports 100% (which is a sin, in my book, but I digress). There is a reason for all of your pain. They just haven’t found it yet. Will you stay close by as we gear up for clinical trials? I believe I know what is “getting” us. On my video about hypermobile EDS, I describe a technique I used to pop my hip back into place. I hope it helps!! Big hug, Diana