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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: MRI showing issues of hindered Cerebro Spinal Fluid (CSF) Flow – Hydrocephalus, Empty sella, etc

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Coping › MRI showing issues of hindered Cerebro Spinal Fluid (CSF) Flow – Hydrocephalus, Empty sella, etc › Reply To: MRI showing issues of hindered Cerebro Spinal Fluid (CSF) Flow – Hydrocephalus, Empty sella, etc

April 12, 2014 at 11:59 am #4979
Barbara
Participant

Some years ago, looking at my series of scans, I could see something was wrong but couldn’t quite explain it. It was like, when I was laid down, the mid-lower part of my neck sort of collapsed backwards, my upper neck seemed to be pushed forwards. This I now know is termed ‘Loss of Lordosis’ – lordosis being the natural ‘C’ shaped curvature of the neck bones.

My head was pushed upwards and sort of rotated frontally, if you get what I mean. I often woke up paralysed, with my chin on my chest. A position I was unable to put my head into before my accident. Wearing the Philadelphia collar and brace during the night, put an end to this and the night-time paralysis (thank goodness – it was horrific!).

I also noticed that my brainstem seemed to be being stretched. It looked like my hind brain (the cerebellum) was being scooped up by the back of my skull and hoiked upwards and forwards towards my brainstem.

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