Absolutely, especially with your years of experience with dealing with eye matters, which seem involved in the condition and with your medical contacts, you are certainly best placed to make headway with the research.
I think if a study was done, it would be shown that many of us have intermittent bouts of raised intracranial pressure. Which would certainly explain many of the ‘intermittent’ symptoms, as cranial nerves become more compressed from time to time.
So, I suppose the question is, is there a physical cause for the intermittent raised Intracranial Pressure, i.e.
1) The low-lying or herniated hind brain that many of us seem to have, that’s bunging up the CSF outflow (depending on body position), or
2) Craniocervical Instability, where the back of the foramen magnum pushes the low-lying or herniated hind brain against the brainstem, interfering with CSF outflow (depending on head position). This is what I discovered was happening to me.
Each of these could hinder or stop the outflowing CSF from the skull to the spine and allow a build up of pressure.
Barbara
(UK)