I get episodes of debilitating chest pain that knocks me down. The episodes usually last 15 minutes but they are debilitating when they occur. They are random and some days they occur over and over again. My doctor says it is costochondritis and I know it is a common thing for EDSers, but is it suppose to be a debilitating, knock you down, so you can’t even speak, kind of pain?
ShondaWhat a great question!! Personally, I don’t *think* chosto. “typically” causes that kind of pain — it’s generally more of a constant ache, from what I’ve read. I can certainly see why we would get that, especially since our ribs seem to subluxate if we just look at them funny. 😉 I’ve looked into Prinzemetal’s angina and histamine producing angina — here’s a link: http://www.ncbi.nlm.nih.gov/pubmed/1793697 . Frankly, I think most of us have experienced this pain, but none of us have been fully evaluated. Chosto. is the easy ‘go-to’ diagnosis. But is it the right one? What do you all think?
Yes! That does sound more like it. I had the feeling they were giving me their best cop out guess. I will research this more. We have to be our own advocates and figure this out on our own first. Thanks Dr. Diana!