• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: MRI showing issues of hindered Cerebro Spinal Fluid (CSF) Flow – Hydrocephalus, Empty sella, etc

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Coping › MRI showing issues of hindered Cerebro Spinal Fluid (CSF) Flow – Hydrocephalus, Empty sella, etc › Reply To: MRI showing issues of hindered Cerebro Spinal Fluid (CSF) Flow – Hydrocephalus, Empty sella, etc

September 20, 2013 at 9:49 am #4396
Barbara
Participant

Hi Barbara,
It is nice to have for sure. I am looking forward to starting on Diamox. Pain of any type wears one down, and just getting rid of one pain would be nice. Dr. Diana has said that she does not have to take Diamox as frequently anymore. She takes it now only when she has a flare up. Will that be something you will do too? Do you still monitor your CO2 levels? How does in work England? It is very impressive that your swelling has gone down. Are you able to get around better?
Shonda

Just a quick reply,
Pain control, I could go on forever about this because I have had so many different pains, all which have to be managed in their own unique way. I say that because general pain-killers do little to relieve it, so I had to look for other cures, or ways of management. One thing that did bring quite a lot of relief was taking effervescent Vitamin D twice a day, it converts in the body into quite a powerful hormone and, due to todays lifestyles, many people are lacking.

Diamox, I have to keep taking 2 x 250mgs tablets a day. Once I’m certain that my raised intracranial pressure (ICP) is less volatile, I might experiment in cutting it down but I’d have to be certain because untreated ICP can cause such devastation.

It’s been difficult getting my CO2 levels monitored in England, they only seem to take heed of the Potassium, despite my constant reminders. Most of my vitamins are effervescent (carbonated) so I rightly or wrongly assume I will be getting a fair bit of Bicarb. If I’m feeling particularly thick-headed I just take Bicarb in water but this is just every once in a while.

Am I able to get around better – I wish! but there’s more going on here and I’m working at it all bit at a time, one day the answers will come.
Regards
Barbara
(UK)

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020