Hi Barbara,
It is nice to have for sure. I am looking forward to starting on Diamox. Pain of any type wears one down, and just getting rid of one pain would be nice. Dr. Diana has said that she does not have to take Diamox as frequently anymore. She takes it now only when she has a flare up. Will that be something you will do too? Do you still monitor your CO2 levels? How does in work England? It is very impressive that your swelling has gone down. Are you able to get around better?
Shonda
Just a quick reply,
Pain control, I could go on forever about this because I have had so many different pains, all which have to be managed in their own unique way. I say that because general pain-killers do little to relieve it, so I had to look for other cures, or ways of management. One thing that did bring quite a lot of relief was taking effervescent Vitamin D twice a day, it converts in the body into quite a powerful hormone and, due to todays lifestyles, many people are lacking.
Diamox, I have to keep taking 2 x 250mgs tablets a day. Once I’m certain that my raised intracranial pressure (ICP) is less volatile, I might experiment in cutting it down but I’d have to be certain because untreated ICP can cause such devastation.
It’s been difficult getting my CO2 levels monitored in England, they only seem to take heed of the Potassium, despite my constant reminders. Most of my vitamins are effervescent (carbonated) so I rightly or wrongly assume I will be getting a fair bit of Bicarb. If I’m feeling particularly thick-headed I just take Bicarb in water but this is just every once in a while.
Am I able to get around better – I wish! but there’s more going on here and I’m working at it all bit at a time, one day the answers will come.
Regards
Barbara
(UK)