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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: MRI showing issues of hindered Cerebro Spinal Fluid (CSF) Flow – Hydrocephalus, Empty sella, etc

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Coping › MRI showing issues of hindered Cerebro Spinal Fluid (CSF) Flow – Hydrocephalus, Empty sella, etc › Reply To: MRI showing issues of hindered Cerebro Spinal Fluid (CSF) Flow – Hydrocephalus, Empty sella, etc

March 14, 2015 at 5:11 pm #5391
kkrylee3
Participant

Thank you for your response. This is my daughter’s mri (who is 23, but this was taken @ 18 yrs old. My son just lost his vision for the first time this week. He is 13 which is the same age that my daughter 1st lost her vision. They both have hypermobile joints, he also is double jointed in both elbows. The poor man’s tilt test was done on him in the E R and his heart rate jumped up 35 beats immediately upon standing. We haven’t seen a doctor yet, other than E R, on his issue. Appointment is set though. My family has members who have connective tissue disorders but not ED (Sjogrens and Scleraderma). And no, there was no physical or emotional trauma prior the blindness which lasted almost an hour with another blackout the following day for only seconds. He was sitting at his desk in class and all of a sudden, he was blind. It happened the same way for my daughter at the same age. She now has POTS, ED Hypermobility Type, Autonomic Neuropathy, and Gastroparesis.

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