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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: MRI showing issues of hindered Cerebro Spinal Fluid (CSF) Flow – Hydrocephalus, Empty sella, etc

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Coping › MRI showing issues of hindered Cerebro Spinal Fluid (CSF) Flow – Hydrocephalus, Empty sella, etc › Reply To: MRI showing issues of hindered Cerebro Spinal Fluid (CSF) Flow – Hydrocephalus, Empty sella, etc

January 24, 2014 at 9:58 pm #4785
Dr. Diana
Keymaster

I just wonder if our CSF pressure could change as fast as our blood pressure? It can swing wildly, after all… Thanks, Hon! 😉

I was in the middle of a video diary, when I had an ‘episode’ where I went from feeling ok, to feeling bad, to feeling ok again. During that episode I took BP readings which showed that when I was feeling BAD my BP was up, when I started feeling ok again, within a few minutes, the BP was nearly back to normal, so in answer to your question above, my experience is that YES they go hand in hand.
Barbara
(UK)

Barb, Oh my, I see you experiment on yourself, too?! 😉 BTW, I started looking for non-invasive ways to check our CSF pressure (years ago), and although there are a few ways to do this, no one really does! I’m trying to get a radiologist to take an interest, and after they give me ‘that look’ (ha), some become interested, but not enough to actually help… I think the day is coming, however! 😉

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