NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Coping › MRI showing issues of hindered Cerebro Spinal Fluid (CSF) Flow – Hydrocephalus, Empty sella, etc › Reply To: MRI showing issues of hindered Cerebro Spinal Fluid (CSF) Flow – Hydrocephalus, Empty sella, etc
You’re more than welcome Charlie1.
As you know, we all need as much useful knowledge as we can get our hands on, in order to improve our chances of survival. Many sufferers are too weak to research, or to speak up about their suffering, of those that speak up their voices alone, are all too commonly left unheard. We need that written evidence, or example of what to look for to give the doctors a starting point. I’ve been researching this condition for well over 10 years now, looking for these precious gems of information. Trouble is you have to sieve through an awful lot of ‘dross’ to find the diamond!
It would seem that complex multi-system issues have little (to no) representation, out there in the medical world, as the doctors ‘in the know’ are very few and far between. It’s down to us really, to get the word out as much as possible, in hope that maybe some inquisitive medical practitioners might take it up and run with it, for all our sakes!