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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Pancreatitis anyone? Oh brother….

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Pancreatitis anyone? Oh brother…. › Reply To: Pancreatitis anyone? Oh brother….

March 21, 2015 at 11:57 pm #5404
amyhosp
Participant

Oh my goodness….. that pain sounds like something I wouldn’t want to wish on anyone.
Dr. Diana, yes to everything you said. I am wondering what we are going to do next. I am just feeling better, well, pain wise but I still feel really icky!!! I guess I’m just tired from being in so much extra pain.
The question I have is related to the questions you asked Dr. Diana. I have clay colored stools a lot and I ask about them to my GI and he just says, I don’t know…. of course my blood work looks ok. (rolling eyes back). Is it not normal to have clay colored stools for EDSers or is this just another one of those things we have and can’t prove with blood work? I tell you what, I am sooooo tired of having symptoms of illnesses and the doctors never paying attention to that but instead want to only depend on blood work to prove stuff. I can’t even think about it because it makes me so mad.
Do you think they put me in the hospital? NO, not that I want to be in the hospital, but come on…… they know how sick I am to start with and they just ignore me. They meaning Baylor ER and Plaza ER and my doctor. uuuggghhh….
Sorry to be a downer with this but it just makes me so frustrated. Another reason I get frustrated is because I have told the ER and my Doc that I live alone with no family close by to help me and that I can’t take care of myself when I am having a bad illness. OH well, I think they are hoping I will go home and die from neglect so that they can get rid of me. lol

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Twitter: @prettyill

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

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