I’m so sorry to hear about your difficulties — incredibly frustrating for you, I’m sure. Questions like this that concern vision are some of the toughest questions to answer without seeing the patient, I’m afraid. As you know, there are some things that are not uncommon that can cause some of these symptoms, but it sounds like you’ve done a good job seeing out help to rule out the “regular stuff”. Awesome. At this point, it would be great to be able to evaluate you personally (and we probably need to look at EVERYTHING from top to bottom to figure this out). That would be my preference! 😉 I do wonder if you have high intracranial pressure contributing to some of your problems. I seem to have become the poster child for that (haha), but those “feelings of pressure” may, indeed, be IIHWOP (idiopathic intracranial hypertension without papilledema). Has anyone tried Diamox with you yet?