Bee,
My doctor is starting to think is might have to do with having an inability (genetic?)to absorb fat soluble vitamins. I’m low in all of those (esp. K) and can barely keep in the middle of the normal range of D on 10,000 IU of D3 (I use Thorne Research D3) for years now! I think there is some kind of test he is thinking of running to check for this, but I don’t know what it is yet.
I have come back with other genetic mutations that make me unable to absorb other vitamins (I have the folic acid/Vit B6 and B12 gene defect, so I have to take activated forms of these vitamins) so I guess this wouldn’t surprise me. Makes me wonder, if this is all genetic, if it is somehow linked to the EDS, since it is genetic. ???