My son and I have EDS III. We both have very low Vit D. He takes supplements fine. I have had a very hard time with Vit D supplements. I have severe cardiac “craziness” ..palpitations, pains, breathing trouble and overall feeling of having taken a bucket full of amphetamines whenever I take anything over 3000 units. My reaction alone makes me suspect an absorption problem. At first I eliminated all additives etc and tried Vit D drops I still found that I felt lousy with anything over 1000 u and felt crisis level/ go into ER awful with anything over 3000. What kind of Vit d etc. made no difference for me. I think the connection has to be there…
Absolutely. and then we have to worry about the electrolyte balance with potassium, calcium, and magnesium. Getting those out of wack can make the heart craziness go into overdrive (been there!). It sounds like you are listening to your body, which is one of the best things we can do if a cardiologist is not willing to live with us for a while (eeks. Imagine the bill!). 🙂