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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Elevated Tryptase and POTS?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Elevated Tryptase and POTS? › Reply To: Elevated Tryptase and POTS?

August 2, 2011 at 1:41 pm #1369
MGC.
Participant

Hi Mary… Thanks! I am aware that high Tryptase is an indicator of Mastocytosis, and am trying to pin down a diagnosis. I just not have ran across anyone else who has both???? Beginning to feel alone here.

Are you of Melungeon heritage? I probably am as well and have done a bit of reading about it. With my high Tryptase finding, I am beginning to wonder if some of the medical problems mentioned are related to Mast Cell Disease.

Dr D… what I have learned is that even if one has a high Tryptase level, it is still hard to get a diagnosis pinned down! Hopefully, thing will improve in this area. Good luck with the Gastrocrom. I have been taking it since last December, and have found it helps with Orthostatic Intolerance, something I really appreciate.

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