• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: palpilledema anyone? Also does anyones eye pressures test high first when they first get checked? then go down the longer they sit in the Dr Office?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › palpilledema anyone? Also does anyones eye pressures test high first when they first get checked? then go down the longer they sit in the Dr Office? › Reply To: palpilledema anyone? Also does anyones eye pressures test high first when they first get checked? then go down the longer they sit in the Dr Office?

May 8, 2012 at 5:31 pm #2128
Dr. Diana
Keymaster

Thats one thing i was very confused about. I always show very elevated pressures in my spinal taps. Have even tapped out before. So i guess i actually do have pseudotumor ceribri. I have not let them give me a spinal tap since last june though. Thats when i started suspected the chiari. They resubbmited the mri to be reread looking for chiari. And a 3 to4 mm was reported. My neuro optamolgist said thats from all the spinal taps they have give me.

Hello, my friend. I am so happy to say that the book form of The Driscoll Theory should be available any day. I think your doctors may understand the external communicating hydrocephalus thing a bit better once they read it. I’d bet my right leg (my “good leg” ha) that you have EXTERNAL COMMUNICATING hydrocephalus contributing to your presentation of Chiari. Sure, numerous taps don’t help, but the Chiari should basically “pop back” unless it is fully “corked” after a tap — UNLESS the fluid in the subarachnoid space above the brain is pushing your brain down just a bit. Now, pseudotumor cerebri is high intracranial pressure that pushes on the optic nerve, causing a “pseudo-papilledema” appearance. The doctors see blurred optic nerve head margins. You can have high intracranial pressure without having pseudotumor (like me!). Can you talk your doctor into a trial of Diamox? I think it would be well worth your time. 🙂 As far as your original question, yes, the pressure of your eyes (your intraocular pressure — not intracranial pressure) can be lower every time it is checked, especially if they are using an applanation tonometer (which they likely are). It pushes out just a little bit of fluid every time. But this reading is not related to the pressure inside your head. Cool? 🙂

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020