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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: The Chronic Fatigue Element

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › The Chronic Fatigue Element › Reply To: The Chronic Fatigue Element

July 24, 2012 at 11:54 pm #2668
Dr. Diana
Keymaster

Hi Diana
Yes, that’s how it happens to me, it comes on sudden, I have to rip off my Philadelphia collar and put on the nice open Headmaster collar while I cool off. I too alternate between hypothermia and sweating profusely. Also I can wake up in the night both hypothermic and yet wet through with sweat!

My mast cells, just taking Cetirizine, are obviously not ‘balanced out’ yet (as you say) as I still wake with puffy hands. I’m starting the Zantac (Ranitidine) next. Do they work ‘together’ in unison, or do they work on seperate things altogether? Roughly how long should I be on these before taking the Cromolyn Sodium, or should I be trying to get on this ASAP?

Keep up the Good Work!!
Kind Regards
Barbara
(UK)

IMHO, Barb, I think getting on mast cell stabilizers is a huge help (although you may not notice the difference for weeks. Hang in there with it.) Zantac is an H2 antagonist, Zyrtec is an H1 antagonist. I’m recommending — FOR OUR FAMILY — triple dose of Zyrtec and single dose of Zantac at night time. I’m not sure if you’ll get Cromolyn or Ketotifen in the UK. Either one should be good… 🙂 Diana

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