Yes, that’s how it happens to me, it comes on sudden, I have to rip off my Philadelphia collar and put on the nice open Headmaster collar while I cool off. I too alternate between hypothermia and sweating profusely. Also I can wake up in the night both hypothermic and yet wet through with sweat!
My mast cells, just taking Cetirizine, are obviously not ‘balanced out’ yet (as you say) as I still wake with puffy hands. I’m starting the Zantac (Ranitidine) next. Do they work ‘together’ in unison, or do they work on seperate things altogether? Roughly how long should I be on these before taking the Cromolyn Sodium, or should I be trying to get on this ASAP?
Keep up the Good Work!!
IMHO, Barb, I think getting on mast cell stabilizers is a huge help (although you may not notice the difference for weeks. Hang in there with it.) Zantac is an H2 antagonist, Zyrtec is an H1 antagonist. I’m recommending — FOR OUR FAMILY — triple dose of Zyrtec and single dose of Zantac at night time. I’m not sure if you’ll get Cromolyn or Ketotifen in the UK. Either one should be good… 🙂 Diana