Well, I’ve been on Diamox for a while now and it’s amazing the difference with my headaches. I had my CO2 checked at about 3-4 weeks with good results. I also purchased some PH strips and capsules for baking soda. My dosage for Diamox is leveled out now. 1/2 in the morning, 1/2 at noon, 1/2 at 4:00 and a whole tablet at bedtime. If I struggle with a headache, I check my PH and usually find it’s acidic. A couple of baking soda capsules take care of it! We haven’t gotten to the point of testing for CCSVI yet. It would mean traveling quite a distance for us.
I could have an fMRI done here, but the sono techs here probably know nothing about CCSVI. Though the Diamox helps with my headaches, I still struggle with the other symptoms of dysautonomia. The fatigue and pre syncope symptoms are the worst and I feel it’s made even worse by the electromagnetic field at work. I’m better when I can work from home. I really feel for everyone who has been struggling with this for years! I’ve only been at it for 1 year and I’m so exhausted trying to get through each day!
I’m also getting treatment for TMJ disorder. Hoping that will help too. The night guard my dentist made for me had my jaw locked up, so I’m hoping that fixing my jaw will also help with the headaches.