NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Elevated Tryptase and POTS? › Reply To: Elevated Tryptase and POTS?
July 31, 2011 at 1:38 pm #1359
Hi Gail, My kids were tested (me next), and came out negative, but as you’ll learn, mast cell dz is a booger to diagnosis. We responded very well to treatment and are now going on prescription Gastrocrom. There is a big movement to change the criteria for diagnosis because more than half of us are missed through traditional testing. You may find the “Patient Experience Letter” at this site helpful: http://mastocytosis.ca/
Please let us know how your treatment goes, OK?