Hi Gail, My kids were tested (me next), and came out negative, but as you’ll learn, mast cell dz is a booger to diagnosis. We responded very well to treatment and are now going on prescription Gastrocrom. There is a big movement to change the criteria for diagnosis because more than half of us are missed through traditional testing. You may find the “Patient Experience Letter” at this site helpful: http://mastocytosis.ca/
Please let us know how your treatment goes, OK?
Big hug,
Diana