Thank you for giving me Dr. Cheney info. I requested Dr. Cheney’s IVRT and ‘lo and behold’ : IT IS CONSISTENT WITH A RESTRICTIVE FILLING PATTERN! Just like Dr. Cheney said. Then he said that the cardiologist wouldn’t understand and ‘lo and behold’, I’m sitting before my cardiologist today (the one who I was told specialized in genetic disorders but actually specializes in congenital heart deformities – like that is in any way similar) and just like Dr. Cheney said – HE SEEMED CLUELESS! I pointed out that I had both relaxation impairment and also a restrictive filling pattern, he was like ‘ok, how bout a sleep study’. OMG! Also, apparently restrictive cardiomyopathy is some sort of joke but I can’t imagine this is so by the horrific way I feel. He also said the tech was not supposed to tell me that I had mitral valve prolapse and that the thickening of my mitral valve was only slight – well, it wasn’t noted as being thickened at all on last year’s echo. And then there are the regurgitations that are common….
Dr. Cheney also mentions fibrinogen as one of his blood tests and I’m low. I could only get so many of them because I only have access to RML and not LabCorps. I’m still high in red blood cell arena and eosinophils.
A sleep study. That’s like taking a Mercedes Benz to a lawnmower shop for service. Gimme a break! I do, also, have immunology appt end of this month. I’ll keep you posted. I just can’t believe that I’m being left to ‘fend for myself’ for years now.
Sad, I’m way too sick to research this mess. Then when I ‘hit paydirt’, nobody gets it. What’s the point?
I do want to thank you though, Barbara. I’ve forgotten what I saw as far as Cheney’s speech but it was so incredibly on target. Thanks again.