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Hi Mary… Thanks! I am aware that high Tryptase is an indicator of Mastocytosis, and am trying to pin down a diagnosis. I just not have ran across anyone else who has both???? Beginning to feel alone here.
Are you of Melungeon heritage? I probably am as well and have done a bit of reading about it. With my high Tryptase finding, I am beginning to wonder if some of the medical problems mentioned are related to Mast Cell Disease.
Dr D… what I have learned is that even if one has a high Tryptase level, it is still hard to get a diagnosis pinned down! Hopefully, thing will improve in this area. Good luck with the Gastrocrom. I have been taking it since last December, and have found it helps with Orthostatic Intolerance, something I really appreciate.
YES! Gail, I’m noticing some orthostatic improvements, after about 2 months on Cromolyn. I had no place to go but up, you understand. My TTT caused an increase in 87 bpm’s in 10 minutes! Yikes! 🙂 Diana